APPG launches ‘Eliminating Hepatitis C in England’ inquiry report

Eliminating Hepatitis C in England report

Eliminating Hepatitis C in England report

The All-Party Parliamentary Group on Liver Health has published its ‘Eliminating Hepatitis C in England’ report, following a launch event in Parliament with speakers including Norman Lamb MP, Sir David Amess MP, Virendra Sharma MP, Baroness Randerson, Baroness Masham and Lord Mancroft advocating for the report’s recommendations.

The report outlines the findings of an inquiry conducted by the APPG in late 2017. Drawing on contributions from experts from across the hepatitis C care pathway, the report sets out action-based recommendations on awareness-raising, prevention, testing and treatment, including calls for: 

  • Introduction of opt-out testing for hepatitis C in substance misuse services, with commissioning contracts stipulating clear mechanisms to hold services to account for failures to meet testing targets.
  • Treatment to be universally accessible and available in community settings like drug and alcohol services and sexual health services.
  • An effective long-term funding deal between NHS England and industry supported by a national elimination plan.

Sir David Amess, co-chair of the APPG on Liver Health, said:

“With the exceptional context of a deadly virus now being fully curable with easily deliverable, highly cost-effective medicines, finding those still undiagnosed and living with hepatitis C should be a national ambition. Eliminating a public health issue that disproportionately affects some of the poorest and most marginalised groups in our society is an extraordinary and eminently achievable opportunity which should be seized with both hands.”

The report focuses on Awareness, Prevention, Testing and Diagnosis, Linkage to Care, Treatment, Funding, and Monitoring Progress.

Highlights from the report summary include: 

“Awareness of hepatitis C within the public and at-risk groups remains low, and stigma continues to be a burden for patients” 

“To achieve elimination of hepatitis C, we must ensure that numbers of new infections are falling, so that increased testing and treatment initiatives lead to a decline in overall prevalence”

“Significantly increased numbers of people will need to be tested and diagnosed. Testing in prisons, substance misuse services and sexual health clinics will need to become routine, and more ambitious targets for testing uptake should be set. Testing initiatives should be introduced in non-clinical settings in the community, and testing practices – for instance, type of test conducted and laboratory procurement specifications – standardised nationally.”

“An increased target of at least 20,000 new treatment initiations per year should be adopted nationally in order to achieve the commitment to eliminate hepatitis C by 2025 expressed by NHS England.”

“A long-term, strategic approach to funding for hepatitis C care and treatment should be developed and supported by a national elimination strategy”

Doctor Steve Taylor, Medical Director for the Saving Lives charity said:

“We now have the ability to cure Hepatitis C, but the biggest challenge remains the diagnosis of those 80,000 or so individuals in England who carry the virus but are completely unaware of the fact.

We need to do all we can educate the public about the new, simpler, testing methods and hugely improved treatments that are now available.”

Read the full report here and a press release on its publication here

Disclaimer

The views of our positive advocates are purely personal, and any advice they provide is given for informational purposes only, and in no way constitutes medical advice. Always consult your doctor.

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